Category Archives: Brain Tumor Experiences

My neuro-onc thinks my tumor will not recur!

I just had an MRI scan and follow-up clinic appointment. The neuro-oncologist expressed the opinion the my tumor is highly unlikely to recur. He believes the bleed that led to my initial presentation might have actually killed all the malignant … Continue reading

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23 Years!

I just had my first MRI scan in 18 months (watch and wait LOL) and I have my clinic appointment with Dr Mason tomorrow. I’ve already seen the MRI report, and no news is good news again.

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22 years since first presentation

And no recurrence!

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Update Dec 19th, 2018

My next MRI and appointment with my neuro-oncologist is not until February 2020. I’m more and more convinced that coronary heart disease will get me before the brain tumour does. Will that make me a winner? Oh, and by the … Continue reading

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Sunday, May 22nd, 2016

Still around, no complaints or evidence of progressive disease.  I’m now a grandad three times over…2 year old Emily and 3 month old twins Jameson and Spencer.

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15th July, 2014

A few things to report. My neuro-onc has switched me from Dilantin to Tegretol for seizure control. Still working, still struggling financially. On the positive side, my daughter, who was eight years old when I was diagnosed, has recently made … Continue reading

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A year on

This time last year I was about to be transferred from St Michael’s Hospital to Providence Healthcare for physio and occupational therapy after my still officially undiagnosed neurological episode that manifested like a stroke and gave me my first unequivocal … Continue reading

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No diagnosis

In my previous post I said that I was yet to be given an official diagnosis for what happened to me in May. Unfortunately that’s still the case. My neurologist initially thought I’d had a stroke, but subsequent scans have … Continue reading

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An interesting few weeks

Long time readers of my blog might remember when I posted an update called “A little Scare” in 2003. In it I related being hospitalised overnight after having stroke-like symptoms. The theory after that incident was that I was having … Continue reading

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A small update

I’ll have more to say in a week or so (that’ll be 15 years since I first entered this surreal world.) Suffice it to say for now, that I’m still here despite the hand that life dealt me. It’s an … Continue reading

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