Category Archives: Brain Tumor Experiences

Sunday, May 22nd, 2016

Still around, no complaints or evidence of progressive disease.  I’m now a grandad three times over…2 year old Emily and 3 month old twins Jameson and Spencer.

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15th July, 2014

A few things to report. My neuro-onc has switched me from Dilantin to Tegretol for seizure control. Still working, still struggling financially. On the positive side, my daughter, who was eight years old when I was diagnosed, has recently made … Continue reading

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A year on

This time last year I was about to be transferred from St Michael’s Hospital to Providence Healthcare for physio and occupational therapy after my still officially undiagnosed neurological episode that manifested like a stroke and gave me my first unequivocal … Continue reading

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No diagnosis

In my previous post I said that I was yet to be given an official diagnosis for what happened to me in May. Unfortunately that’s still the case. My neurologist initially thought I’d had a stroke, but subsequent scans have … Continue reading

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An interesting few weeks

Long time readers of my blog might remember when I posted an update called “A little Scare” in 2003. In it I related being hospitalised overnight after having stroke-like symptoms. The theory after that incident was that I was having … Continue reading

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A small update

I’ll have more to say in a week or so (that’ll be 15 years since I first entered this surreal world.) Suffice it to say for now, that I’m still here despite the hand that life dealt me. It’s an … Continue reading

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Annual clinic visit today

I had my MRI last week, and today I returned for my annual two minutes with my neuro-oncologist (or whichever resident he delegated to this time.) Actually, I really saw him this time…for about 45 seconds. First a disembodied voice … Continue reading

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The annual round of appointments begins

MRI scan this coming Wednesday. Follow up clinic visit next week. Wish me luck!

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14 years. Who’d have thought it?

This last week I celebrated I passed 14 years since the initial presentation of what was originally thought to be Glioblastoma Multiforme. It probably wasn’t that, and the current diagnosis according to my neuro-oncologist is Anaplastic Oligodendroglioma. I’m not even … Continue reading

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Sad news from the community

Death of prominent brain tumour singer and songwriter David M Bailey The international brain tumour community is mourning the death of one of its greatest heroes, US singer and songwriter David M Bailey, who passed away on Saturday morning in … Continue reading

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