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	<title>My Brain Tumor Journey, The Story So Far...</title>
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	<pubDate>Thu, 04 Sep 2008 02:53:46 +0000</pubDate>
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		<title>Moving farther away (or not)</title>
		<link>http://btstory.info/?p=38</link>
		<comments>http://btstory.info/?p=38#comments</comments>
		<pubDate>Thu, 04 Sep 2008 02:53:46 +0000</pubDate>
		<dc:creator>Administrator</dc:creator>
		
		<category><![CDATA[Brain Tumor Experiences]]></category>

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		<description><![CDATA[At the end of June we moved away from Bowmanville, Ontario (where my brain tumour story started) to a hobby farm about 125 km farther east. Simultaneously I rented an apartment in Toronto so that I could eliminate the lengthy commute. So now I live Monday-Friday in Toronto and weekends at the farm. There&#8217;s lots [...]]]></description>
			<content:encoded><![CDATA[<p>At the end of June we moved away from Bowmanville, Ontario (where my brain tumour story started) to a hobby farm about 125 km farther east. Simultaneously I rented an apartment in Toronto so that I could eliminate the lengthy commute. So now I live Monday-Friday in Toronto and weekends at the farm. There&#8217;s lots of work to be done on the farm and renovations to make to the farm house. I have started a pictorial blog showing our progress which can be found <a href="http://picasaweb.google.com/john.reay/LupinFarm?authkey=jI3Vnftvvt0#">here</a></p>
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		<title>A new diagnosis</title>
		<link>http://btstory.info/?p=37</link>
		<comments>http://btstory.info/?p=37#comments</comments>
		<pubDate>Thu, 04 Sep 2008 02:43:29 +0000</pubDate>
		<dc:creator>Administrator</dc:creator>
		
		<category><![CDATA[Brain Tumor Experiences]]></category>

		<guid isPermaLink="false">http://btstory.info/?p=37</guid>
		<description><![CDATA[Some time ago I posted about the search for a differential diagnosis after I experienced symptoms that might have been TIA/stroke, seizure or perhaps classical migraine with neurological symptoms. Recently I went to see a neurologist for a consult at the suggestion of my family doctor. My medical specialists now seem to have agreed that [...]]]></description>
			<content:encoded><![CDATA[<p>Some time ago I posted about the search for a differential diagnosis after I experienced symptoms that might have been TIA/stroke, seizure or perhaps classical migraine with neurological symptoms. Recently I went to see a neurologist for a consult at the suggestion of my family doctor. My medical specialists now seem to have agreed that the most likely explanation for my symptoms (which have not recurred in the last six months) is migraine.</p>
<p>An interesting thing came out when I visited the neurologist&#8230;my neuro-oncologist had sent him a report on my case in which he described my tumour as an anaplastic oligodendroglioma. Since I&#8217;d not heard that from Dr Mason directly, I now had some questions for my next clinic appointment. That clinic appointment was last week. So I asked Dr. Mason, if this diagnosis made any difference after eleven years of survival. He replied in typical fashion, (paraphrasing) &#8220;well you&#8217;re still here aren&#8217;t you?&#8221; The clear implication being that if I&#8217;d really had a gbm then I wouldn&#8217;t have survived this long. Now that&#8217;s something I have long suspected, but that&#8217;s the first time I heard it from my neuro-onc. </p>
<p>By the way, when I asked if the diagnosis made a difference, I wanted to know if it made any difference to my treatment options if the tumour came back. Dr Mason said it would make little difference.</p>
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		<title>11 Years Tonight</title>
		<link>http://btstory.info/?p=33</link>
		<comments>http://btstory.info/?p=33#comments</comments>
		<pubDate>Fri, 15 Feb 2008 03:54:38 +0000</pubDate>
		<dc:creator>Administrator</dc:creator>
		
		<guid isPermaLink="false">http://btstory.info/?p=33</guid>
		<description><![CDATA[Who would have believed it? I still can&#8217;t. Today I have survived for 11 years since the first presentation of my brain tumor. This is the first day of the rest of my life.
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			<content:encoded><![CDATA[<p>Who would have believed it? I still can&#8217;t. Today I have survived for 11 years since the first presentation of my brain tumor. This is the first day of the rest of my life.</p>
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		<title>Scheduled MRI</title>
		<link>http://btstory.info/?p=32</link>
		<comments>http://btstory.info/?p=32#comments</comments>
		<pubDate>Tue, 13 Nov 2007 01:38:00 +0000</pubDate>
		<dc:creator>Administrator</dc:creator>
		
		<guid isPermaLink="false">http://btstory.info/?p=32</guid>
		<description><![CDATA[I had the MRI last Thursday at 5:45 pm]]></description>
			<content:encoded><![CDATA[<p>My regular clinic appointment is not until next August, as a result of my little scare over the summer. However my November MRI scan was not canceled. I had the MRI last Thursday at 5:45 pm. I haven&#8217;t bothered to pick up the CD-ROM yet. There&#8217;s no appointment to go with this scan, so unless on review there turns out to be a problem, I&#8217;ll sit on this one until next year.</p>
<p>Meanwhile, I had a Doppler-ultrasound of the carotid arteries done on Sunday morning.  And today I took my first cholesterol medication.</p>
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		<title>Feeling numb</title>
		<link>http://btstory.info/?p=31</link>
		<comments>http://btstory.info/?p=31#comments</comments>
		<pubDate>Tue, 21 Aug 2007 02:30:38 +0000</pubDate>
		<dc:creator>Administrator</dc:creator>
		
		<guid isPermaLink="false">http://reay.dyndns.org/?p=31</guid>
		<description><![CDATA[Lately I&#8217;ve been having episodes similar to what I described in this post. I never really got a satisfactory explanation of what happened back in November &#8216;03. This time the same thing has happened 4-5 times in the last six weeks (although not at all in the last two weeks.)  Oddly four times the [...]]]></description>
			<content:encoded><![CDATA[<p>Lately I&#8217;ve been having episodes similar to what I described in <a href="http://reay.dyndns.org/?m=200311">this post.</a> I never really got a satisfactory explanation of what happened back in November &#8216;03. This time the same thing has happened 4-5 times in the last six weeks (although not at all in the last two weeks.)  Oddly four times the problem has been on my right side, and once on my left.  Each episode has lasted about 30 minutes. I have not had headaches. It hasn&#8217;t been severe enough to send me to the emergency dept., but I did get an appointment with my family doctor. He recommended I get an early appointment with Dr. Mason at the Pencer Centre, which I have done. Basically my regular November visit is being brought forward to August. </p>
<p>One disturbing possibility that has been mentioned this time around is focal seizures. It that&#8217;s the consensus, then I might have my driving license pulled for a year, which would not be conducive to me working in Toronto and living out here in the &#8216;burbs. Oh well, an MRI and an EEG might give a clue as to what&#8217;s going on. I&#8217;ll update this after the latest round of medical appointments.</p>
<p>Update: August 29th, 2007<br />
I had an MRI last evening and I saw Dr Mason this morning. The scan once again showed no change. Dr Mason&#8217;s opinion, from my description of the numbness episodes, is that this is unlikely to be seizure related. I will now make another appointment with my family doctor and look for other reasons for what I have recently experienced.</p>
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		<title>Can it be 10 years?</title>
		<link>http://btstory.info/?p=30</link>
		<comments>http://btstory.info/?p=30#comments</comments>
		<pubDate>Mon, 26 Feb 2007 16:10:21 +0000</pubDate>
		<dc:creator>Administrator</dc:creator>
		
		<guid isPermaLink="false">http://reay.dyndns.org/?p=30</guid>
		<description><![CDATA[Yikes, those 10 years really went by fast. To recap, first presentation Feb 14th, 1997. Diagnosed gbm and given 9-18 month prognosis. Biopsy only, followed by radiation and chemo (CCNU.) Watch and wait for the last several years, but no recurrence as yet. I suspect I might really have had a chemo-sensitive Oligodendroglioma and not [...]]]></description>
			<content:encoded><![CDATA[<p>Yikes, those 10 years really went by fast. To recap, first presentation Feb 14th, 1997. Diagnosed gbm and given 9-18 month prognosis. Biopsy only, followed by radiation and chemo (CCNU.) Watch and wait for the last several years, but no recurrence as yet. I suspect I might really have had a chemo-sensitive Oligodendroglioma and not the advertised gbm, but nobody can say for sure.  Still working, living normally. I&#8217;m sure I&#8217;ve changed as a result of all this, but you&#8217;d have to ask my family and friends as I&#8217;m not qualified because I don&#8217;t see me from their point of view.</p>
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		<title>Latest clinic visit</title>
		<link>http://btstory.info/?p=29</link>
		<comments>http://btstory.info/?p=29#comments</comments>
		<pubDate>Fri, 17 Nov 2006 15:54:16 +0000</pubDate>
		<dc:creator>Administrator</dc:creator>
		
		<guid isPermaLink="false">http://reay.dyndns.org/?p=29</guid>
		<description><![CDATA[my now annual 30 seconds with my neuro-oncologist]]></description>
			<content:encoded><![CDATA[<p>One of the things that struck me this time is how places change when you don&#8217;t visit them for an extended period. Although the Pencer Brain Tumor clinic is pretty much unchanged there have been quite a few cosmetic changes to Princess Margaret Hospital (the institution within which it&#8217;s housed.) I showed up at lunch time on a rainy November 16th for my now annual 30 seconds with my neuro-oncologist Dr Warren Mason. Everything is still good. I count my blessings. I&#8217;ll have to see if I can find something interesting to write about between clinic visits!</p>
<p>I&#8217;m not sure how many people read this website as I rarely get comments or e-mails anymore, which is a stark contrast to the early days.  If you have visited this site and found it useful&#8230;please speak up so I know you&#8217;re out there. The guestbook is moderated, which means that nothing appears until I&#8217;ve had a chance to review it (usually about once every couple of days.) If I didn&#8217;t review it there would be about 10-15 spam messages for sexual performance enhancers, hot stock tips and all kinds of porn showing up every day. I wonder who actually buys any of that stuff&#8230;or if the spam is just some neferious plot to render the internet useless. It&#8217;s certainly annoying.</p>
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		<title>Next clinic visit coming up&#8230;</title>
		<link>http://btstory.info/?p=28</link>
		<comments>http://btstory.info/?p=28#comments</comments>
		<pubDate>Mon, 23 Oct 2006 16:05:10 +0000</pubDate>
		<dc:creator>Administrator</dc:creator>
		
		<guid isPermaLink="false">http://reay.dyndns.org/?p=28</guid>
		<description><![CDATA[It&#8217;s just under a month until my next clinic appointment, and I have nothing new to report on the brain tumor front&#8230;which is good!
My wife recently had a suspicious mole removed and the biopsy came back &#8220;Melanoma, Stage 1&#8243;. I hope the removal is the end of it, although she&#8217;s been scheduled for a wider [...]]]></description>
			<content:encoded><![CDATA[<p>It&#8217;s just under a month until my next clinic appointment, and I have nothing new to report on the brain tumor front&#8230;which is good!</p>
<p>My wife recently had a suspicious mole removed and the biopsy came back &#8220;Melanoma, Stage 1&#8243;. I hope the removal is the end of it, although she&#8217;s been scheduled for a wider excision just in case.<br />
I&#8217;m also going to see the same surgeon in early December for a mole removal (been there, done that.) Here in Ontario such procedures are not covered under our provincial medical plan unless there is a suspicion of malignancy.</p>
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		<title>Another Anniversary</title>
		<link>http://btstory.info/?p=26</link>
		<comments>http://btstory.info/?p=26#comments</comments>
		<pubDate>Sat, 18 Feb 2006 21:05:39 +0000</pubDate>
		<dc:creator>Administrator</dc:creator>
		
		<guid isPermaLink="false">http://reay.dyndns.org/?p=26</guid>
		<description><![CDATA[Valentine&#8217;s Day has rolled around again. The day has bittersweet memories for me, as long time readers will know, as it was nine years ago today that my brain tumor first presented. Thus began nine years to date of &#8220;interesting times&#8221;. Or to put it another way another milestone (millstone?) of my life experience.  [...]]]></description>
			<content:encoded><![CDATA[<p>Valentine&#8217;s Day has rolled around again. The day has bittersweet memories for me, as long time readers will know, as it was nine years ago today that my brain tumor first presented. Thus began nine years to date of &#8220;interesting times&#8221;. Or to put it another way another milestone <em>(millstone?)</em> of my life experience.  Depending how I count them my milestones are/were getting married, moving to Canada, our first child and the brain tumor.</p>
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		<title>The Big Five-Oh</title>
		<link>http://btstory.info/?p=25</link>
		<comments>http://btstory.info/?p=25#comments</comments>
		<pubDate>Tue, 27 Dec 2005 17:17:56 +0000</pubDate>
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		<description><![CDATA[Today is my fiftieth birthday. I&#8217;m not entirely happy with my life after fifty years, but considering the alternative I guess things are not too bad! I plan to have a quiet evening at home tonight, if my family lets me.
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			<content:encoded><![CDATA[<p>Today is my fiftieth birthday. I&#8217;m not entirely happy with my life after fifty years, but considering the alternative I guess things are not too bad! I plan to have a quiet evening at home tonight, if my family lets me.</p>
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